RAWF Executive Director at the IBTA World Summit in Vienna, Austria
Brain tumor patient advocates, clinicians and researchers convened in Vienna, Austria last month at the …
RAWF
Darren (12) Receives Medical Device from RAWF
Recently, the Raymond A. Wood Foundation provided a blood analyzer to Jialin, also known as …
Development of Patient Registry Well Underway
The Raymond A. Wood Foundation hosted our first International Hypothalamic-Pituitary Brain Tumor Patient Registry advisory …
Jessica, a Germinoma Survivor, Faces Sodium Complications Later in Life
Survivors of hypothalamic-pituitary tumors pay a high price for survival. Many, through their lifetime, will …
Patient Story: Jack
Hello, my name is Jack! In 2015, I was diagnosed with a Craniopharyngioma in May …
A True Survivor – Meet Gadiel, RAWF’s Latest Blood Analyzer Recipient
Gadiel is described as a loving and strong six-year-old boy. On 3/6/2020, he endured a …
Patient Story: Leigh
A story of tumor recurrence and a survivor’s persistence. My name is Leigh Blair. In …
Meet Bostyn, Latest Handheld Blood Analyzer Recipient
Bostyn was diagnosed and treated for a craniopharyngioma brain tumor in the summer of 2021 and since then, daily labwork has been a requirement to manage diabetes insipidus, a condition, caused by the tumor or treatment, where the brain can no longer manage the body’s fluid balance. This can cause high or low blood sodium which can be fatal if not managed properly, but management of this condition is tricky.
Patient Story: Trinity
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Trinity was born on October 23, 2008, a beautiful, healthy 8lb 6oz baby girl. It …
