2024 Year in Review: Advancing Advocacy, Research, and Support
Reflecting on a Year of Growth, Resilience, and Community Impact As we close 2024, the ... Read more
Navigating the Challenges of Caregiving During the Holidays
Finding Balance and Connection During the Holidays: Tips for Caregivers at Home and in the ... Read more
Innovating in Diabetes Insipidus Management: A Breakthrough in Blood Sodium Testing
Introduction Managing diabetes insipidus just got a significant boost, thanks to the groundbreaking work of ... Read more
Development of Patient Registry Well Underway
The Raymond A. Wood Foundation hosted our first International Hypothalamic-Pituitary Brain Tumor Patient Registry advisory ... Read more
Jessica, a Germinoma Survivor, Faces Sodium Complications Later in Life
Survivors of hypothalamic-pituitary tumors pay a high price for survival. Many, through their lifetime, will ... Read more
RAWF Develops Spanish Language Resources through a Grant
In 2022, the Raymond A. Wood Foundation (RAWF) was named a grantee of the Global ... Read more
A True Survivor – Meet Gadiel, RAWF’s Latest Blood Analyzer Recipient
Gadiel is described as a loving and strong six-year-old boy. On 3/6/2020, he endured a ... Read more
Meet Bostyn, Latest Handheld Blood Analyzer Recipient
Bostyn was diagnosed and treated for a craniopharyngioma brain tumor in the summer of 2021 and since then, daily labwork has been a requirement to manage diabetes insipidus, a condition, caused by the tumor or treatment, where the brain can no longer manage the body’s fluid balance. This can cause high or low blood sodium which can be fatal if not managed properly, but management of this condition is tricky.
2022 Research Progress on Craniopharyngioma
by Nathalie Kayadjanian, Ph.D., RAWF Scientific Advisor Image Credit: National Cancer Institute While surgery and ... Read more
Learning How to Drive Research
The Raymond A. Wood Foundation Joins Fellow Rare As One Network Organizations in a Convening Hosted by Chan Zuckerberg Initiative
Grantees of the Chan Zuckerberg Initiative (CZI) Rare As One (RAO) Network convened this past week in San Diego, California for three days of training on advancing research in their respective diseases.
