Comprehensive Resources for Enhancing Patient Care
At the Raymond A. Wood Foundation, we are dedicated to supporting and collaborating with medical professionals in their efforts to provide the best care for patients affected by hypothalamic-pituitary brain tumors. This section of our website offers comprehensive information and resources to assist you in understanding the complexities of these tumors and the long-term challenges faced by survivors as well as the support and assistance we provide for patients and their families.
Disease Information
Current Clinical Trials
Patient Support
As a medical professional, guiding your patients with hypothalamic-pituitary brain tumors to the right resources is essential. RAWF provides programs and information to help you direct your patients and their families towards the support they need. From educational materials to community resources, we offer the essentials to enhance patient care and improve quality of life.
Handheld Blood Analyzers for Challenging Arginine Vasopressin Deficiency (AVP-D, diabetes insipidus)
Caregiver and Patient Support Groups
Informational Videos on Disease Management
Downloadable brochure: Hypothalamic-Pituitary Brain Tumors and Associated Endocrine Disorders
Hypothalamic-Pituitary Brain Tumors Patient Registry
Established in 2024 by the Raymond A. Wood Foundation, the registry is a comprehensive and secure database opento individuals with rare hypothalamic-pituitary brain tumors (e.g. craniopharyngioma) and their caregivers around the world.
Joining the Hypothalamic-Pituitary Brain Tumors Patient Registry provides your patients and their caregivers with a unique opportunity to share their experiences and perspectives about their healthcare journey. Their participation actively contributes to advancing research and developing new treatment options for this rare condition.
How You Can Help:
- Inform Your Patients: Let them know about the existence and importance of the registry.
- Support Participation: Encourage them to share their experiences to aid in research and treatment advancements.
Contact Us
If you have any questions or need further assistance, our team is here to help. Whether you are seeking additional information about hypothalamic-pituitary brain tumors, require support for your patients, or want to learn more about our resources and services, please do not hesitate to contact us. Reach out to us directly via phone, email, or through our online contact form, and we will respond promptly to your inquiries.
